Rare Epilepsy Network: A PCORnet Study to Engage Patients in Research

Other Title(s)
Conducting Patient-Centered Comparative Effectiveness Research: Exemplars From the Field [Symposium]
View File(s)
Thumbnail
3_Buelow_J_s23583_1.pdf
PDF (960.6Kb)
Buelow_J_s23583_Info.pdf
PDF (121.6Kb)
Author Information
  • Details
  • Janice Buelow, PhD, School of Nursing, Department of Community Health Nursing, Indiana University, Indianapolis, Indiana, USA
  • Sigma Affiliation
  • Alpha

Item Information
Item Link - Use this link for citations and online mentions.
http://hdl.handle.net/10755/623251
Abstract
The Rare Epilepsy Network is a data base built for and by people/families with a rare epilepsy. It is part of PCORnet and is designed to provide a place for patients and researchers to design studies important to those with the diagnosis of a rare epilepsy.
Description
44th Biennial Convention 2017 Theme: Influence Through Action: Advancing Global Health, Nursing, and Midwifery.
Repository Posting Date
2017-10-13T19:39:49Z
Notes
Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.
 
This record is part of an event symposium session. To locate other records associated with this symposium session, search the repository using the session key labeled as "Other Identifiers" in this record, or search by the symposium title. Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository, unless otherwise noted.
Type Information
TypePresentation
AcquisitionProxy-submission
Review TypeAbstract Review Only: Reviewed by Event Host
FormatText-based Document
Category Information
Evidence Level
KeywordsPCORnet;
Patient Engagement;
Rare Epilepsy
Conference Information
Name44th Biennial Convention
HostSigma Theta Tau International, the Honor Society of Nursing
LocationIndianapolis, Indiana, USA
Date2017
Rights Holder

All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.

All permission requests should be directed accordingly and not to the Sigma Repository.

All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.

Contact Us | Send Feedback
Powered by KnowledgeArc