Parenting stress in parents of infants with congenital heart disease and parents of healthy infants: The first year of life
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Nadya Golfenshtein; Alexandra L. Hanlon; Janet A. Deatrick; Barbara Medoff-Cooper
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Background: While we know that the parents of infants with congenital heart disease (CHD), the most prevalent group of congenital anomalies, experience increased parenting stress, the stress levels throughout infancy have yet to be studied. Stress experienced by parents beyond the normative stress of parenting can interfere with parenting processes, and bear adverse family outcomes. Aims: To describe and compare parenting stress levels during infancy between parents of infants with complex CHD and parents of healthy infants. Methods: The Parenting Stress Index-Long Form was distributed to parents of infants with complex CHD and parents of healthy infants (N=129), in a prospective cohort study. T-tests were used to compare stress between groups at three, six, nine, and twelve months of age. Findings: Parents of infants with complex CHD had higher parenting stress than parents of healthy infants on multiple subscales on the Child and Parent Domains, at three months of age. The stress remained higher on the Demandingness subscale throughout infancy. Parents of CHD infants also demonstrated significantly higher stress scores on the Life Stress subscale at 12 months of age. Conclusions: Findings highlight stressful periods related to parenting infants with CHD, which may increase existing psychosocial risk for parents of infants with CHD. Early family intervention may promote parental adaptation to the illness, and help establishing healthy parenting practices.
The Sigma Theta Tau International grant application that funded this research, in whole or in part, was completed by the applicant and peer-reviewed prior to the award of the STTI grant. No further peer-review has taken place upon the completion of the STTI grant final report and its appearance in this repository.
Type | Working Paper |
Acquisition | Self-submission |
Review Type | None: Sigma Grant Recipient Report |
Format | Text-based Document |
Evidence Level | Cohort |
Research Approach | Quantitative Research |
Keywords | Parenting Stress; Congenital Heart Disease; Infants |
CINAHL Subject(s) | Heart Defects, Congenital; Parents--Psychosocial Factors; Stress, Psychological; Infant; Parenting; Parents |
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