Partnering with families to validate questionnaires assessing unmet needs of children, adolescents, and parents/caregivers at the end of cancer treatment
Mary Conway, MSN, RN, CPHON, Mu Chapter; Courtney King, RN, CPON; Leigh Hart BSN, RN, CPON; Andrew Needham, BSN, RN; Elizabeth Holden, BSN, RN, CPHON; Tiffany Ruiz, BSN, RN; Ruth Lucas PhD, RN, Mu Chapter
- Sigma Affiliation
Visits vs Downloads
Visitors - World Map
Top Visiting Countries
Top Visiting Cities
Visits (last 6 months)
Downloads (last 6 months)
Popular Works for Conway, Mary by View
Popular Works for Conway, Mary by Download
Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament. After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.
The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.
The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.
This research was funded by a J. Patrick Barnes Nursing Research Grant, provided by the DAISY Foundation
This work has been approved through a peer-review process prior to its posting in the Virginia Henderson Global Nursing e-Repository.
|Review Type||Peer-review: Single Blind|
|Research Approach||Qualitative Research|
Instrument Development/instrument Validation;
|CINAHL Subject(s)||Instrument Validation;
Cancer Patients--In Infancy and Childhood;
Cancer Patients--In Adolescence;
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Showing items related by title, author, creator and subjects.
Development and validation of the needs of children's questionnaire to measure children's needs in hospital Foster, Mandie Jane; Whitehead, Lisa; Arabiat, Diana (2018-06-14)The activity will illustrate the steps required to develop, validate and psychometrically test a new tool, the needs of children's questionnaire, as generated by the self-reported experiences of school aged children in hospital.
African-American, Hispanic, and Caucasian parents' perception and management of chronically ill children in the home Joffe, Patricia D.Advances in technology and knowledge have contributed to a growing population of children with chronic illness. Nurses caring for chronically ill children and their families in the home environment have witnessed a rapid ...
Joseph, Rachel AbrahamChildren's health and well-being are invariably related to the health and well-being of their parents or caregivers. Many parents undertake home care of children with a tracheostomy who require highly complex and technology ...
The meaning of stressful life experiences as described by nine to eleven-year-old children: A phenomenological study Jacobson, GloriaThe preponderance of literature regarding stress and children has been based on adults' perceptions of how children view stressful life experiences. A qualitative study using the phenomenological method was conducted to ...
Schneider, Susan M.The objective of this study was to test the premise that virtual reality, as a developmentally appropriate distraction intervention, mitigates chemotherapy related symptom distress in older children with cancer aged 10-17. ...