Partnering with families to validate questionnaires assessing unmet needs of children, adolescents, and parents/caregivers at the end of cancer treatment

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Author Information
  • Details
  • Mary Conway, MSN, RN, CPHON, Mu Chapter; Courtney King, RN, CPON; Leigh Hart BSN, RN, CPON; Andrew Needham, BSN, RN; Elizabeth Holden, BSN, RN, CPHON; Tiffany Ruiz, BSN, RN; Ruth Lucas PhD, RN, Mu Chapter
  • Sigma Affiliation
  • Mu

Item Information
Item Link - Use this link for citations and online mentions.
http://hdl.handle.net/10755/622552
Abstract

Transitioning off cancer treatment is a momentous occasion for pediatric patients and their families, but also brings anxiety and fear, suggesting that there are unmet needs/gaps in services provided at the end of treament.  After examining the process of transitioning off cancer treatment, the hematology/oncology nursing research workforce group wished to determine if the current practices at our institution are meeting the needs of our patients and their parents/caregivers.

The experiences and needs of pediatric cancer patients and their parents/caregivers at the end of treatment, as reported in the literature, are predominantly descriptive studies with small sample sizes, restricting generalizability of results. Additionally, there is limited research evaluating existing programs and services at the end of treament. The "Coming off Treatment" questionnaire (COT) (Nagel, et al., 2002) was developed to assess issues important to parents of children completing cancer therpy. Although this questionnaire has been utilized in two studies to date, no psychometric information based on the COT has been published.

The purpose of this study was to adapt the COT into End of Treatment (EOT) questionnaires for both children with cancer and their parent/caregivers, and to validate these EOT questionnaires.

Funder(s)
The DAISY Foundation
Description

This research was funded by a J. Patrick Barnes Nursing Research Grant, provided by the DAISY Foundation

Repository Posting Date
2017-08-30T16:13:25Z
Notes

This work has been approved through a peer-review process prior to its posting in the Virginia Henderson Global Nursing e-Repository.

Type Information
TypePoster
AcquisitionSelf-submission
Review TypePeer-review: Single Blind
FormatText-based Document
Category Information
Evidence LevelOther
Research ApproachQualitative Research
KeywordsChildren;
Parents;
Instrument Development/instrument Validation;
Cancer;
Adolescent
CINAHL Subject(s)Instrument Validation;
Needs Assessment;
Cancer Patients;
Cancer Patients--In Infancy and Childhood;
Cancer Patients--In Adolescence;
Caregivers;
Parents;
Parents--Psychosocial Factors
Conference Information
NameBuilding Brighter Futures: Advances in Pediatric and Neonatal Care 2017
HostConnecticut Children's Medical Center
LocationGroton, Connecticut, USA
Date2017
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