Pain, coping and sleep in children and adolescents with sickle cell disease
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Joyce Kelly Graves, PhD, DNSc, RN; Eufemia Jacob, PhD, RN
- Sigma Affiliation
- Gamma Tau at-Large
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Session presented on: Monday, July 22, 2013:
Purpose: The purpose of this study was to examine pain, pain coping and sleep and to examine the relationship among pain, pain coping and sleep in children and adolescents with sickle cell disease. Factors (age, gender and number of pain episodes) that predict pain, pain coping and sleep in children also were examined in this population.
Methods: Children (n=39; mean 11.9 - 1.1 years) and adolescents (n=27; mean 15.5 - 0.9 years) with sickle cell disease completed an electronic visual analog scale (eVAS), Adolescent Pediatric Pain Tool, Pain Coping Questionnaire, and Pittsburg Sleep Quality Index prior to participating in a wireless intervention program.
Results: Overall pain the past month showed that 23 (34.8%) participants had no pain, 27 (40.9%) had mild (mean 1.8 - 1.1 on 0 to 10 eVAS); 10 (15.1%) had moderate (mean 5.3 - 1.0) and 6 (9.0%) had severe (8.1 - 0.6) pain. The coping strategies used were positive approaches (2.76 - 0.76), problem focused (2.71 - 0.81), emotion focused (1.73 - 0.63), and distraction (2.71 - 0.92). The majority had mild (n=44; 67%) or moderate (n=18; 27%) sleep disturbance; few were severe (n=4; 0.6%). The most common sleep disturbances, which occurred once or twice a week, were waking up in the middle of the night or early morning (n=19; 26.8%), feeling too cold (n=15; 21.1%), feeling too hot (n=14; 19.7%), and using the bathroom (n=14; 19.7%). Age, gender and number of pain episodes did not have significant effects on pain, pain coping and sleep.
Conclusion: The majority of the children with sickle cell disease experienced mild to moderate pain and mild to moderate disturbed sleep. Identifying pain coping strategies of children with SCD can inform health care managers regarding interventions to facilitate uninterruped sleep and improve children's daytime quality of life.
24th International Nursing Research Congress Theme: Bridge the Gap Between Research and Practice Through Collaboration. Held at the Hilton Prague Hotel.
Items submitted to a conference/event were evaluated/peer-reviewed at the time of abstract submission to the event. No other peer-review was provided prior to submission to the Henderson Repository.
Type | Presentation |
Acquisition | Proxy-submission |
Review Type | Abstract Review Only: Reviewed by Event Host |
Format | Text-based Document |
Evidence Level | N/A |
Research Approach | N/A |
Keywords | Pain in Children; Sleep; Coping |
Name | 24th International Nursing Research Congress |
Host | Sigma Theta Tau International |
Location | Prague, Czech Republic |
Date | 2013 |
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