Elderly partners' lived experience of bladder and/or colorectal cancer diagnosis living with a ostomy
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Abstract
Bladder and colorectal cancer (CRC) are two of the most aggressive types of cancer with treatment creating physical and psychosocial comorbidities that affect the quality of life of patients affected by the disease. Numerous studies have been conducted about the experiences and needs of people who have had a bladder and/or CRC diagnosis, surgical intervention, and an ostomy, but studies about the experiences of the elderly partners are negligible. Specifically, the older adult (65–84 years old) group was found to be essentially unstudied with only 10 (0.51%) known 75- to 84-year old participants included in relevant studies that involved 1,750 participants. Thus, this elderly group may have distinct experiences, needs, and challenges that are unknown and would warrant our attention. Therefore, the purpose of this study was to illuminate the experiences of this group of elderly (65 to 84 years old) partners of patients diagnosed with bladder and/or CRC with ostomy. The purpose of the research study was to illuminate the perceptions of and reactions of those elderly who are living with a person who has had surgery for CRC resulting in an ostomy. Using the phenomenological approach guided by the Roy Adaptation Model (RAM), the research study addressed the question: “What are the elderly partners’ lived experiences of living with a person who had surgery for bladder and/or CRC resulting in an ostomy?” Interview questions were formulated from the review of the literature and focused on questions asked previously (Perrson, Severinsson, & Hellstrom, 2004). Narrative descriptions shared by the participants (N = 11) during individual interviews and Giorgi's descriptive phenomenological method were used to address the knowledge gap. Participants were recruited from support groups and the United Ostomy Association of America within Los Angeles, Orange, Riverside, and San Bernardino counties. All were partners (cohabitating husband, wife, or intimate significant other) of a person who had a bladder and/or CRC diagnosis and surgery resulting in an ostomy. On average, the participants were (a) 74.1 (standard deviation, 6.33) years old, (b) English reading/speaking, (c) cognitively intact (Mini-CogTM with Clock Drawing Test score of 3–5), (d) literate at greater than the sixth-grade reading (Rapid Estimate of Adult Literacy in Medicine—Short Form, score greater than or equal to 4), and (e) agreeable to participate in a one-on-one audiotaped interview. The interview length average was 39.3 (standard deviation, 12.53) minutes and ranged from 10 to 55 minutes. Using Giorgi’s five-step analysis method, five themes emerged that illuminated the partners’ experience and are presented in their order of frequency: (a) feeling supported by others, (b) providing support to the person with cancer and an ostomy, (c) expressed needs, (d) accepting/adjusting to diagnosis/treatment/ostomy, and (e) advocating for and to the person with cancer and an ostomy. The findings have suggested that the young- to middle-old adult partners’ experiences mirror those of younger partners of patients with bladder and/or CRC and an ostomy with respect to (a) feeling supported by others, (b) providing support to the person with cancer and an ostomy, (c) accepting and adjusting to diagnosis/treatment/ ostomy, and (d) advocacy for and to the person with cancer. However, their experiences differed with respect to their expressed needs and the lack of importance of sexuality. Their needs were amenable to nursing intervention. The findings may serve as the foundation for future studies to improve the care of the elderly partners of patients with a bladder and/or CRC diagnosis, surgery, and an ostomy.
Description
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 13425279; ProQuest document ID: 2195480836. The author still retains copyright.
Repository Posting Date
2021-09-24T14:10:22Z
Notes
This item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
Type Information
Type | Dissertation |
Acquisition | Proxy-submission |
Review Type | None: Degree-based Submission |
Format | Text-based Document |
Category Information
Evidence Level | Phenomenology |
Research Approach | Qualitative Research |
Keywords | Bladder Cancer; Colorectal Cancer; Elderly Adults; Ostomies; Caregivers; Colostomies |
Degree Information
Grantor | Azusa Pacific University |
Advisor | Westlake-Canary, Cheryl; Fongwa, Mary; Doyle, John A. |
Level | PhD |
Year | 2019 |
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All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
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