Relationship between perceptions of home discharge readiness and parental health literacy (PHL) of NICU parents of Black preterm infants
View File(s)
- Author(s)
- Details
-
Dr. Mia K. Waldron, PhD, MSN-Ed, NPD-BC
- Sigma Affiliation
- Phi Epsilon
Visitor Statistics
Visits vs Downloads
Visitors - World Map
Top Visiting Countries
Country | Visits |
---|
Top Visiting Cities
City | Visits |
---|
Visits (last 6 months)
Downloads (last 6 months)
Popular Works for Waldron, Mia K. by View
Title | Page Views |
---|
Popular Works for Waldron, Mia K. by Download
Title | Downloads |
---|
View Citations
Citations
Background: The United States (U.S.) ranks last among western nations in overall infant mortality rates and ranks second highest in rates of preterm birth among the same nation group (MacDorman, Matthews, Mohangoo & Zeitlin, 2014). The U.S. infant mortality data show that Black infants have the highest incidence among all groups (Ely, Driscoll & Matthews, 2018; Murphy, Xu, Kochanek & Arias, 2018). Infants born prematurely are among those at highest risk for infant death with Black women delivering premature infants at rates higher than all other U.S. groups (Ely, Driscoll & Matthews, 2018; Murphy, Xu, Kochanek & Arias, 2018; Xu, Murphy, Kochaanek & Bastian, 2016). A number of factors have been postulated to explain this persistent disparity. One such factor is Parental Health Literacy (PHL). PHL is defined as the ability to learn, read, comprehend, and act on health information specifically related to the care and condition of a dependent child. Poorer child health outcomes and low levels of PHL, are associated with inconsistent health promotion behaviors by parents (Kumar, et al., 2010; Shone, Conn, Sanders & Halterman, 2009; Velardo & Drummond, 2013).
Purpose: The purpose of the study was to explore the relationships between levels of PHL, perceived discharge teaching effectiveness and parental readiness to provide care for their Black preterm infants at home after discharge from the Neonatal Intensive Care Unit (NICU) with parent and infant demographics.
Methods: A descriptive approach was used for this study of parents of Black preterm infants from a Level IV NICU, located in an urban area. Qualitative analysis of the perceptions of the parents, prior to NICU discharge, was via semantic content analysis of interview data organized into thematic categories for cluster analysis. The framework guiding the study was the revised Kenner Transition Model (Boykova & Kenner, 2012) which was developed specifically for NICU parents. Quantitative analyses of relationships among the variables using parent scores from the Parent Health Activities Test (PHLAT), Transition Questionnaire (TQ) and Quality of Discharge Teaching Survey (QDTS) were completed using descriptive statistics (Boykova & Kenner, 2012; Kumar et al., 2010; Weiss et al., 2008).
Results: The study sample of ten parents had high (50%) or moderate (30%) PHL; high (30%) or moderate (50%) transition readiness and high (20%) or moderate (40%) perceptions of the quality of discharge teaching as measured by the PHLAT, TQ and QDTS. Qualitative analysis of parent data affirmed all five domains of the revised Kenner Transition framework; ‘Informational Needs’ and ‘Professional Support’ were the domains unanimously endorsed by coded parent responses. A sub-group of demographically similar NICU mothers described a markedly negative experience with healthcare staff that may indicate the presence of stereotyping and/ or implicit biases.
Implications: Consideration of PHL, implicit bias and optimization of parent- provider communication and discharge teaching practices can contribute positively to the readiness of parents to provide care at home after NICU discharge; thus, potentially decreasing disparate infant morbidity and mortality outcomes experienced by U.S. Blacks.
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 27736021; ProQuest document ID: 2354894821. The author still retains copyright.
This item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
Type | Dissertation |
Acquisition | Proxy-submission |
Review Type | None: Degree-based Submission |
Format | Text-based Document |
Evidence Level | Descriptive/Correlational |
Research Approach | Qualitative Research |
Keywords | Neonatal Intensive Care Unit (NICU); Parent Experience; Home Discharge; Transition Readiness; Black Infants; Parental Health Literacy |
Grantor | Villanova University |
Advisor | Perry, Lesley; Dowdell, Elizabeth |
Level | PhD |
Year | 2019 |
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Related items
Showing items related by title, author, creator and subjects.
-
The relationships between and among parental perceptions of family-centered care, parental beliefs, and parental stress in the pediatric intensive care unit
Keefe-Marcoux, KellyChildren hospitalized for critical care require increasingly complex and technical care, which can be very stressful for parents. Awareness of the importance of parents’ role while their child is receiving critical ... -
The experience of mothers' post-NICU discharge in caring for infants dependent on medical technology
Norton, Michelle C.; Krouse, Anne M.A qualitative descriptive design was implemented to conduct in-depth interviews with mothers about their experience in the immediate post discharge period from the Neonatal Intensive Care Unit when their infant was discharged ... -
Neonatal intensive care unit to home transition for families of preterm infants
Pickler, Rita H.; Goyal, Neera; Cooley, Heather Tubbs; Moore, Margo; Sealschott, Stephanie; Tepe, KarinPreterm birth and subsequent hospitalization is a significant worldwide health concern with financial and human costs. The results of this study provide evidence for transition to home programs from both parent and care ... -
Parents' knowledge and experiences with preterm and full term infant care after hospital discharge
Avorgbedor, Forgive; Holditch-Davis, Diane L.; Hughes, Hannah Anderson (2016-03-17)Session presented on Sunday, July 26, 2015; Purpose: The purpose of this literature review is to update the literature on how parents handle infants after hospital discharge and highlight show areas for which the needs ... -
Perceptions and attitudes of parents and healthcare professionals toward infant massage in NICU
Abdallah, BahiaThe findings of this study will shed the light on the facilitators and barriers for future implementation of moderte pressure massage in the NICU. It will advance current knowledge on understanding the factors that determine ...