Self-transcendence: A phenomenological perspective of the mother's experience of having a child with a disability
Review TypeNone: Degree-based Submission
Repository Posting Date2020-06-26T21:27:19Z
Author(s)Wright, Joyce F.
Author DetailsDr. Joyce F. Wright, PhD, RN, CNE
Lead Author Sigma AffliationKappa Eta
Level of EvidencePhenomenology
Research ApproachQualitative Research
CINAHL HeadingsMothers; Parents of Disabled Children; Mothers--Psychosocial Factors; Parents of Disabled Children--Psychosocial Factors
Having a child with a disability is experienced as the loss of the illusion or “perfect” child and has a powerful and continued impact upon the mother. This interpretative phenomenological research guided by Patricia Benner's (1994) methodology, and a philosophical perspective of feminism, explored the world of mothers caring for children with disabilities. The research question was “What is the nature of having a child with a disability for the mother?” Participant mothers were accessed approximately 2-years post disability diagnosis from a New Jersey early intervention program. Two interviews were performed several weeks apart in the mother's home environment; a third contact by telephone confirmed the emergent themes and the true representation of the phenomenon. Manual coding, evaluation and interpretation were carried out for data analysis. The following themes emerged from the interpretive data analysis of the mother's experience: (1) consuming blame while searching for an explanation for the child's disability; (2) overwhelming cloud of not knowing in the search for answers; (3) striving to deal with unpredictable public perception in an attempt to dispel the hurtful myth of having a child with a disability; (4) experiencing complex and changing motherhood roles; (5) destiny preparing mothers to care for their children; (6) spirituality giving a deep inner dimension; (7) experiencing appreciation of the greatest magnitude for a better life, and (8) becoming, a profound personal growth. The overarching theme to represent this phenomenon was self-transcendence. This research has contributed to the overall body of research on the nature of the mother's perspective of having a child with a disability. High-risk infants are now surviving with complex and intricate health care needs and multiple disabilities. Nurses must be knowledgeable to care for this vulnerable population, the mother and family unit. By heightening awareness and creating dialog, this phenomenological research will lead to a greater depth of understanding and meaning of the mother's perception, and through that insight may lead to improvement in practice and further nursing's knowledge base.
DescriptionThis dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3075174; ProQuest document ID: 305493713. The author still retains copyright.
Degree GrantorWidener University
NotesThis item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
Visits vs Downloads
Visitors - World Map
Top Visiting Countries
Top Visiting Cities
Visits (last 6 months)
Downloads (last 6 months)
Popular Works for Wright, Joyce F. by View
Popular Works for Wright, Joyce F. by Download
The citations below are meant to be used as guidelines. Patrons must make any necessary corrections before using. Pay special attention to personal names, capitalization, and dates. Always consult appropriate citation style resources for the exact formatting and punctuation guidelines.