Siblings of children with Down Syndrome: Voices heard
Dr. Kimberlee A. Sutter, PhD, RN
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Graves, Rebecca JermynPurpose. The purpose of this study was to examine the health-related quality of life (HRQOL) and factors associated with the HRQOL of adults with Down syndrome (DS) as reported by adults with DS and their caregivers. The ...
A celebration of family: Family actions supporting task achievement in elementary school-age children with cystic fibrosis Malachowski, Judith MarieAlthough society is facing a new challenge of supporting an increasing prevalence of children with chronic illnesses, families always have known the joys and hardships of care. The literature (Cystic Fibrosis Foundation, ...
Kinsey, LaurelPurpose: The purpose of this project was to provide and assess an educational intervention for a multidisciplinary interprofessional collaborative sedation team at a children’s hospital in Anchorage, Alaska. Background: ...
Nurse's perceptions of family dynamics in caring for children with anorexia nervosa: Reports of care experiences Camarena, Lucy (2016-03-21)Session presented on Saturday, November 7, 2015 and Sunday, November 8, 2015: The research in this paper looked at nurses' perspectives on family dynamics in caring for children with anorexia nervosa in the clinical setting. ...
Dynamics and identity in families of gender non-conforming children/youth: A longitudinal phenomenological exploration Alegria, Christine M. Aramburu (2016-03-21)Session presented on Monday, November 9, 2015: Dynamics and Identity in Families of Gender Non-Conforming Children/Youth: A Longitudinal Phenomenological Exploration: The present study explores the dynamics and evolution ...