HIV informal caregiving: Role responsibilities and the effects of case management
View File(s)
- Author(s)
- Details
-
Nancy R. Reynolds, PhD, APRN, FAAN
- Sigma Affiliation
- Nu Beta at-Large
Visitor Statistics
Visits vs Downloads
Visitors - World Map
Top Visiting Countries
Country | Visits |
---|
Top Visiting Cities
City | Visits |
---|
Visits (last 6 months)
Downloads (last 6 months)
Popular Works for Reynolds, Nancy R. by View
Title | Page Views |
---|
Popular Works for Reynolds, Nancy R. by Download
Title | Downloads |
---|
View Citations
Citations
The purpose of this study was to describe how HIV informal caregivers experience the social and biophysical dimensions of the HIV illness process and develop a supportive and sustaining environment. The specific aims of this project were to: (1) explore the role responsibilities of HIV/AIDS informal caregivers over the course of HIV illness; and (2) describe the effect of a case management model on HIV/AIDS informal caregivers' health/well-being and satisfaction with formal services. A prospective design was used to facilitate exploration of the emergent nature of the caregiving role. Data was gathered in 32 indepth interviews with 20 subjects who were the primary caregivers to individuals manifesting HIV/AIDS. The interviews, guided by a semi-structured interview format, were audiotaped and transcribed. Data was coded and thematically analyzed using interpretative techniques. A randomized portion of the sample received case managed services and its effects were evaluated with standardized outcome measures of health/well-being and satisfaction with formal services. HIV informal caregiving was analyzed as a three phase process. The first phase of HIV informal caregiving, beginning the role, involves decisions to assume the role and issues to be negotiated as the caregiver adapts to the altered patient-caregiver relationship. The second phase, sustaining the role, centers on matters of identity building and the aspects of managing the role in relation to performing patient centered activities; managing courtesy stigma; living with loss and sorrow; and minimizing exposure to the virus. The last phase of the role, ending the role, involves the processes by which caregivers may relinquish their role prematurely as a means of minimizing role conflict/overload and the grief and bereavement processes that occur following patient death. The major role responsibility for HIV informal caregivers that occurred over the three phases was finding "balance," a process by which the caregiver sought to secure coherence and equilibrium between several interacting and often opposing processes in which they were engaged. Development of the HIV informal caregiver role was found to be particularly intricate because HIV informal caregiver role expectations are complicated by the unusual social meanings surrounding AIDS and gay relationships. It was not established that case management effected HIV informal caregiver health/well-being and satisfaction with formal services.
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 9401340; ProQuest document ID: 304085225. The author still retains copyright.
This item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
Type | Dissertation |
Acquisition | Proxy-submission |
Review Type | None: Degree-based Submission |
Format | Text-based Document |
Evidence Level | Other |
Research Approach | Mixed/Multi Method Research |
Keywords | HIV Caregivers' Experiences; Patient-Caregiver Relationships; Patient Case Management |
CINAHL Subject(s) | Role--Evaluation; Psychological Well-Being--Evaluation; Personal Satisfaction--Evaluation; Caregivers; HIV-Infected Patients; Role; Case Management; Psychological Well-Being; Personal Satisfaction |
Grantor | The Ohio State University |
Advisor | Anderson, Carole A. |
Level | PhD |
Year | 1993 |
All rights reserved by the author(s) and/or publisher(s) listed in this item record unless relinquished in whole or part by a rights notation or a Creative Commons License present in this item record.
All permission requests should be directed accordingly and not to the Sigma Repository.
All submitting authors or publishers have affirmed that when using material in their work where they do not own copyright, they have obtained permission of the copyright holder prior to submission and the rights holder has been acknowledged as necessary.
Related items
Showing items related by title, author, creator and subjects.
-
The lived experience of registered nurses caring for patient living with HIV/AIDS in Broward County, Florida: A phenomenological inquiry
Wright, Archimore Alexander (2017-05-19)Vulnerability, opportunistic infections, and infection-related illnesses, caused by the human immunodeficiency virus (HIF), progressively overwhelms the human immune system resulting in acquired immunodeficiency syndrome ... -
The relationships between work-family conflict, job satisfaction and psychological well-being among African American nurses
Gipson-Jones, Trina L.The specific aims of the proposed study, which were derived from Roy's Adaptation model (Roy & Andrews, 1999) are to (1) determine the levels of the dimensions of work-family conflict, job satisfaction and psychological ... -
Moderating effects of cognitive adaptability on expressive writing outcomes among persons infected with human immunodeficiency virus
Wagner, Lois J.This study explored the effects of expressive writing on psychological well-being, health status, and adherence among persons with human immunodeficiency virus (HIV) infection. It further explored the moderating effects ... -
The influences of family interaction and spiritual well-being on elders' psychological well-being and suicidal ideation
Yeh, Pi-MingThe purpose of this study was to examine the influences of family interaction and spiritual well-being on elders' psychological well-being and suicidal ideation. Life Satisfaction/self-actualization, Life/self-responsibility, ... -
Spiritual diary, spiritual growth, and well-being in Korea
Kim-Godwin, Yeoun Soo; Kim, Suk-Sun; Gil, MinjiThe purpose of this study is to examine differences of spiritual growth, psychological and physical well-being in relation to the frequency of writing spiritual diaries in Korea.