Parental perceptions of family social supports in families with children with epilepsy
Kim Alexander Decker, PhD, RN, CNS
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The current study utilizes initial baseline data from a National Institutes of Health-funded pilot study titled, “Creating Avenues for Parent Advocacy: An Intervention for Parents of Children with Epilepsy and Significant Learning Problems” (Buelow, 2010). The relationships of family needs (need for information, family and social support, financial support, help related to explaining to others, child care, professional support, and community services), family empowerment, and quality of life (emotional, time, and activity) to parental perceptions of family social supports in families with children with epilepsy were explored. Family needs for financial support, help regarding explaining to others, and professional support, as well as family needs total scores were associated with parental perceptions of social support. However, there were no relationships between the family need for information, family and social support, child care, or community services, respectively, and parental perceptions of social support. Similarly, there was no association between family empowerment or quality of life (emotional, time, and activity), respectively, and parental perceptions of social support. Findings are discussed in regard to other literature on family social supports, as well as limitations of the current study and implications for future research.
This dissertation has also been disseminated through the ProQuest Dissertations and Theses database. Dissertation/thesis number: 3628670; ProQuest document ID: 1560892494. The author still retains copyright.
This item has not gone through this repository's peer-review process, but has been accepted by the indicated university or college in partial fulfillment of the requirements for the specified degree.
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