Experiences and Perceptions of Spousal/Partner Caregivers of Community Dwelling People with Dementia: A Qualitative Systematic Review
Review TypeNone: Sigma Grant Recipient Report
Repository Posting Date2019-02-21T20:41:56Z
Author(s)Macdonald, Marilyn; Martin-Misener, Ruth; Weeks, Lori; Moody, Elaine; Helwig, Melissa; MacLean, Heather
Author DetailsDr. Marilyn Macdonald, Professor & Associate Director Graduate Studies, School of Nursing, Dalhousie University Dr. Ruth Martin-Misener, Professor, Interim Director and Associate Dean Research Faculty of Health, School of Nursing, Dalhousie University Dr. Lori Weeks, Associate Professor, School of Nursing Dalhousie University Dr. Elaine Moody Post Doctoral Fellow, School of Nursing, Dalhousie University Melissa Helwig, MLS Library Scientist Dalhousie University Heather MacLean, MA Research Assistant, School of Nursing, Dalhousie University
Lead Author Sigma AffliationKappa Zeta at-Large
Lead Author AffliationDalhousie University, School of Nursing, Faculty of Health
Level of EvidenceSystematic Review
Research ApproachQualitative Research
CINAHL HeadingsCaregivers--Psychosocial Factors; Spouses--Psychosocial Factors; Dementia--Psychosocial Factors; Caregivers; Spouses; Dementia
Currently, 50 million people in the world have a diagnosis of dementia and this number is predicted to climb to 75 million by 2030. In Canada, up to 937,000 people will be living with dementia by 2031. The majority of care for people with dementia is provided by family members, particularly spouses/partners. Objective: To synthesize the evidence regarding the experiences of spousal/partner caregivers of community-dwelling adults with a dementia. Method: A Joanna Briggs Institute systematic review of qualitative evidence was conducted. A JBI certified Information Scientist developed, conducted and produced the search strategy. Two reviewers independently reviewed titles and abstracts, and reviewed full text of included studies using inclusion/exclusion criteria, and conducted data extraction. Data were synthesized by a team of five reviewers and four categories were identified. . Results: The categories generated from 19 included studies are; caregiver duties, need for information and resources, disappearance of a way of being, and consequences of caregiving. The two synthesized findings were; the expectation to care in the midst of uncertainty and unpredictability, and the caregiver as hostage. Conclusion: Healthcare providers need to be aware of the extent of change in the lives of the person with dementia and the spousal/partner caregiver to promote adequate support and respite to spousal/partner caregivers. Implications for policy include the need to recognize the value of the spousal/partner caregiver in a way that preserves health and wellbeing.
Funder(s)Sigma Foundation for Nursing; Nova Scotia Health Research Foundation; Faculty of Health, Dalhousie University
NotesThe Sigma Theta Tau International grant application that funded this research, in whole or in part, was completed by the applicant and peer-reviewed prior to the award of the STTI grant. No further peer-review has taken place upon the completion of the STTI grant final report and its appearance in this repository.
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